Category: Mental Health

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Advocacy

Federal Election: Mental health commitments by major parties

Mental health carers are still missing from major election promises. Clinical services help—but carers carry the load between the gaps. This election, ask your candidates: Where is the support for carers? Mental Health Carers Australia has responded to the major parties’ funding commitments, highlighting what’s included, what’s missing, and why carer voices must be part of the plan. If you support someone with mental ill-health, it’s worth a read. Read the full MHCA response here: https://arafmi.com.au/wp-content/uploads/2025/04/MHCA-Response-to-Major-Party-Election-Commitments.pdf

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ProdCommission
Advocacy

Speaking Up for Mental Health Carers

Did you know? An estimated 1 million Australians were caring for someone with mental ill-health in 2018, with 700,000 living in the same household. Replacing that unpaid support was valued at $13.2 billion (in 2016)—nearly twice what was being spent on all mental health services at the time. That’s why Arafmi’s Sue Goodwin, Lived Experience Advocacy Team Lead, and Alex Tyson, General Manager Carer Programs and Advocacy met with the Productivity Commission to make sure mental health carers are prioritised in the National Mental Health and Suicide Prevention Agreement. They raised that services and supports for families and unpaid carers need to be part of the mental health system—and valued just as much as services for people experiencing mental ill-health. Without this, carers face long-term emotional, physical, mental and financial impacts. The discussion also highlighted the need for support beyond just primary carers—like children and young people caring for a parent or sibling, and family groups, kin, and chosen family. Everyone involved in the caring journey deserves to be seen and supported. Other key issues included the 92,000+ Queenslanders with moderate and severe psychosocial needs still missing out on care, the lack of after-hours crisis services, and the additional pressures faced by

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PoweringUpSummitReflection
Advocacy

Reflections on the Powering Up Lived Experience Workforce Summit: Written by Heidi Höynk

Attending the Powering Up Lived Experience Workforce Summit in February 2025 was an eye-opening experience. As a long-time carer navigating Queensland’s mental health system, I’ve often found myself feeling frustrated, unheard, and exhausted—not because support doesn’t exist, but because the system itself can be isolating and unresponsive. Organisations like Arafmi have been invaluable in providing a space for carers to feel supported and heard, helping to pick up the pieces when the system fails us. However, the treatment of carers, of loved ones and the systemic issues within mental health services remain draining and disheartening. Stepping into this summit, surrounded by others who truly understood these challenges, I felt a renewed sense of purpose and possibility. Over two days, I had the opportunity to listen, learn, and reflect on what lived experience means in the context of systemic change. Dr. Louise Byrne set the tone with a simple yet profound truth: the lived experience workforce is real, it’s on the ground, and it’s making a difference. Authenticity is key—our stories, both the good and the ugly, are not just valuable but necessary in shaping better services. However, it’s not just about being present; it’s about ensuring we have an equal

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QB Submission
Advocacy

Submission to the Queensland Budget 2025 – 2026

Submission to the Queensland Budget 2025-2026 In this joint pre-budget submission to the Queensland government’s 2025 budget, QAMH, Arafmi, and MHLEPQ call on the Government to deliver long term solutions by: 1. Jointly funding the identified gap in Queensland’s psychosocial supports. 2. Expanding the support available to families and other members of regional, rural and remote communities who provide unpaid care for those experiencing mental health challenges. 3. Commencing preparatory work for the next iteration of the Better Care Together plan. 4. Strengthening the embedding of Lived Experience across Queensland Government systems and services. 5. Funding a well-resourced ecosystem of supports, based on social prescribing, to reduce the burden on clinical services.  Read the full submission below. Read here

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Advocacy

Preparing for Tropical Cyclone Alfred

Tropical Cyclone Alfred is expected to bring heavy rainfall, damaging winds and potential flooding to Brisbane and surrounding areas in the coming days. As carers, it’s essential to take extra steps to ensure both your safety and the wellbeing of those you support. Below are  preparations to help you stay safe before, during and after the cyclone. Helpful Resources Get Ready QueenslandGet Ready Queensland is a year-round program helping all Queenslanders prepare for natural disasters. Being prepared before a disaster hits could be the difference between staying safe or putting yourself in danger. Create an emergency plan at Get Ready QLD. The easy to follow guide will help you know your risks, make a safety plan and make an emergency kit. Bureau of MeteorologyVisit the Bureau of Meteorology for regular forecasts, warnings, monitoring and advice. Local CouncilYou can sign up to Brisbane City Council’s Severe Weather Alerts here, or visit the following emergency pages: Redlands City Council, Moreton Bay, Ipswich, Logan, Gold Coast and Sunshine Coast. ABC RadioYou can pre-program your local ABC radio station into your preferred digital music service and on your battery operated radio, so that you can tune into warnings if the internet goes down. ABC EmergencyThe

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Arafmi Mental Health Carer Forum 24
Advocacy

Arafmi’s Mental Health Carer Forum 2024

Are you caring for someone experiencing mental ill-health? Want to meet others who are in the same situation, talk through the issues, challenges, explore some solutions and have some fun?  Then come along to Arafmi’s free Mental Health Carer Forum.  The forum will be held during National Carers Week (13-19 October), a time to recognise, celebrate, and raise awareness about the 3 million Australians who provide care and support to family members or friends. There are two ways to participate in the forum this year: Submit an Expression of Interest to attend in person at The Ballroom, Victoria Park, Herston Or watch online via YouTube. You will have the opportunity to: Hear from key speakers including Brian Herd, Australia’s leading expert on law relating to older people and future planning; Shanon Cooper, a mental health carer with extensive experience in the human services sector; and Ivan Frkovic, Queensland’s Mental Health Commissioner. Learn how to use your Lived Experience as a mental health carer to advocate for policies and services that better support you and the person you care for. Engage in discussions with key representatives from mental health organisations on issues that matter to you. Discover the latest information about

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Human Rights Submission
Advocacy

Submission to review of Queensland’s Human Rights Act 2019

Submission to the Human Rights Act Review Arafmi recently made a submission to the Independent Review of Queensland’s Human Rights Act. The Human Rights Act was established in 2019 to protect and promote the human rights of Queenslanders when they interact with Queensland Government departments and services, including public hospitals, public mental health services, police and public schools. In our submission we highlighted that due to lack of appropriate mental health services, many mental health carers feel they do not get a choice in taking on a caring role, which is in essence a lack of protection of their right to freedom from forced work. We provided examples of where public systems and services are not balancing the rights of carers with the rights of those they care for, including in relation to privacy, liberty and security of person.  We also suggested that the right to social and economic participation should be considered for inclusion under the Human Rights Act and that much greater attention needs to be given in public policy and services to the protection of whole families (using the broadest possible definition of families) and children and young people who are caring for someone with mental ill-health.

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At what cost?
Advocacy

Arafmi’s inaugural mental health carers report: ‘At what cost? The experiences of unpaid mental health carers in Queensland 2023 – 2024’

Arafmi’s inaugural mental health carers report: ‘At what cost? The experiences of unpaid mental health carers in Queensland 2023 – 2024’ “At What Cost?” collates and analyses the feedback from carers in consultations held by our Advocacy Team, late last year. The report has been mailed out to all State MPs, Queensland-based Federal MPs, senior public servants and other stakeholders. Follow-up meetings will occur to raise awareness of the systemic reforms that carers need. In this report, Arafmi has identified six areas for action that will guide our advocacy work over the next two years: Raise awareness of mental health carers so that they can be better recognised and supported. Advocate for physical, emotional, social, mental health, and practical support for mental health carers. Facilitate access to relevant information and training for mental health carers. Promote carer inclusion in mental health treatment planning and implementation. Increase financial assistance for carers. Advocate for inclusion of the voices of mental health carers in mental health reform. A summary of the key findings and recommendations can be found in the document below: Read here “You often find out the hard way what’s available and what would’ve helped in the early stages. It would

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ARAFMI Carer Forum 2021
Mental Health

National Carers Week and Queensland Mental Health Week 2021

National Carers Week and Queensland Mental Health Week was celebrated from 10 – 16 October 2021 and the Arafmi Team was busy all week with stalls at the West Moreton Mental Health Expo, Caring for Carers event at St John QLD, West End and the Brisbane Mental Health Expo. Arafmi was also a sponsor of the Carers Queensland, Carer Friendly Business Awards event on Tuesday, 12 October and we would like to congratulate all the winners – well done!  Arafmi also hosted two events for our mental health carers – one was a collaboration with the Lovewell Foundation/Lovewell Café at Mt Gravatt Outlook and the other was our annual Carer Forum. Lovewell – Take Time to Connect    It’s a beautiful morning up at the Mt Gravatt Outlook with our wonderful carers. lovewell 1 lovewell 2 lovewell 3 lovewell 4 We were very pleased to co-host an event with the team at Lovewell Foundation and the Lovewell Café up at Mt Gravatt Outlook. The event was possible thanks to the 2021 Queensland Mental Health Week Community Events Grant Program.   The Lovewell café provided delicious treats for carers, and wellness activities were available including yoga and aromatherapy. Stallholders from organisations such as the Carer Gateway, Lives Lived Well, Stepping Stones and Carers Queensland were also onsite to help provide information to our carers. Despite the rain we had a very impressive turnout and as you can see from the photos – a good time was had by all!  Carer Forum 20211013 ARAFMI Carers Forum 107 20211013

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Carer Story

National Volunteer Week

Former Australian Politician Elizabeth Andrew once said “volunteers do not necessarily have the time, they have the heart”. This wonderful group within our community numbers almost 6 million nationwide and without them, many of those who are vulnerable and at risk would not receive the support they need.   From 17 – 23 May we celebrate and recognise our volunteers, the unpaid workers among us who donate their time to help those in need. The theme for this year is Recognise. Reconnect. Reimagine.   At Arafmi, we are very lucky to have volunteers who help us facilitate some of our carer support groups as well as working with our telephone support line for carers. Louise and Sharni are two such volunteers, and as part of National Volunteer Week this year, we sat down with them both to chat about what it’s like to volunteer. Thank-you to Louise and Sharni for taking the time to share their volunteering story with us and allowing us to share it with you. Here’s to all the volunteers out there who offer up their time to help others in need. Thank-you for making the world a better place. Louise Volunteer Telephone Support Worker 28 years with Arafmi Louise and her husband Roger first discovered Arafmi when their teenage son was diagnosed with bipolar disorder in 1993. When I asked Louise where they

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