At what cost?

Arafmi’s inaugural mental health carers report: ‘At what cost? The experiences of unpaid mental health carers in Queensland 2023 – 2024’

“At What Cost?” collates and analyses the feedback from carers in consultations held by our Advocacy Team, late last year. The report has been mailed out to all State MPs, Queensland-based Federal MPs, senior public servants and other stakeholders. Follow-up meetings will occur to raise awareness of the systemic reforms that carers need.

In this report, Arafmi has identified six areas for action that will guide our advocacy work over the next two years:

  1. Raise awareness of mental health carers so that they can be better recognised and supported.
  2. Advocate for physical, emotional, social, mental health, and practical support for mental health carers.
  3. Facilitate access to relevant information and training for mental health carers.
  4. Promote carer inclusion in mental health treatment planning and implementation.
  5. Increase financial assistance for carers.
  6. Advocate for inclusion of the voices of mental health carers in mental health reform.

A summary of the key findings and recommendations can be found in the document below:

"You often find out the hard way what’s available and what would’ve helped in the early stages. It would be good to have someone support you from the beginning and throughout the journey to help connect to services.”

"When you lose yourself in life due to caring, that's wwhen you become a carer. You aren't just a mum or dad.”

Related Posts:

Hidden Role of young carers
Carer Event

The hidden role of young carers

“I just thought it was normal” – the hidden reality of young mental health carers For many young people, caring doesn’t have a name. It’s something they do as part of everyday life, being there when someone needs them. As Tanya Boge from our Carer Support Team explains: “Many young mental health carers don’t identify with the word ‘carer’ they see what they do as just helping out.” What often goes unseen is everything that sits behind that. The mental load, the worrying, the responsibility, and the feeling like they have to stay strong, even when things are uncertain. Over time, that can begin to shape how young people see themselves and where their own needs fit. “Many also grow up without clear boundaries, which can make it harder to balance their own needs alongside supporting someone else.” For Tanya, this understanding comes from her own experience. “It’s important to me because I was a young mental health carer myself, even though I didn’t have that language at the time. I just thought it was normal to take on that level of responsibility and not have clear boundaries.” Looking back, she can see how those early experiences shaped her. “Without

Read More »
Meet Carol
Arafmi Staff

Meet the Carer Gateway Team: Carol from Townsville

Support where it didn’t exist before Meet Carol, supporting mental health carers in Townsville When Carol Sheeren sits down with a carer for the first time, she notices the same moment. “You can actually see it… they relax and just exhale.” She calls it “the great exhale”, that instant when someone realises they finally have space just for them, and someone who will listen without judgement. Carol is Arafmi’s Carer Gateway Carer Facilitator in Townsville. Since starting last August, she’s been quietly building connections, supporting carers one-on-one, linking them with resources, and offering support where it hasn’t always been available. Her work is part of Arafmi’s partnership with Wellways Carer Gateway, bringing support into regional and remote communities. Meeting carers where they are Without a dedicated hub in Townsville, Carol meets carers where they feel most comfortable, a park, a café, or a quiet space away from home. She also spends one day a week at the Medicare Mental Health Centre, where she meets carers and connects them with other supports. That choice gives carers a chance to step out of their role, even briefly, and focus on themselves. “People often need that first… just to feel supported before they’re

Read More »

Arafmi’s inaugural mental health carers report: ‘At what cost? The experiences of unpaid mental health carers in Queensland 2023 – 2024’

Skip to content