ProdCommission

Did you know? An estimated 1 million Australians were caring for someone with mental ill-health in 2018, with 700,000 living in the same household. Replacing that unpaid support was valued at $13.2 billion (in 2016)—nearly twice what was being spent on all mental health services at the time.

That’s why Arafmi’s Sue Goodwin, Lived Experience Advocacy Team Lead, and Alex Tyson, General Manager Carer Programs and Advocacy met with the Productivity Commission to make sure mental health carers are prioritised in the National Mental Health and Suicide Prevention Agreement. They raised that services and supports for families and unpaid carers need to be part of the mental health system—and valued just as much as services for people experiencing mental ill-health. Without this, carers face long-term emotional, physical, mental and financial impacts.

The discussion also highlighted the need for support beyond just primary carers—like children and young people caring for a parent or sibling, and family groups, kin, and chosen family. Everyone involved in the caring journey deserves to be seen and supported.

Other key issues included the 92,000+ Queenslanders with moderate and severe psychosocial needs still missing out on care, the lack of after-hours crisis services, and the additional pressures faced by carers in rural and remote areas. In Queensland, mental health and suicide prevention services are still not well integrated between state and federal levels—leaving carers to fill the gaps.

They also flagged the lack of national data. Aside from Arafmi’s statewide consultation and a few surveys, there’s very little information about mental health carers—who they are, what they experience, or what support they receive. And without data, carers stay invisible.

The Commissioners were genuinely interested and open to ideas. They were particularly impressed by the Carer Hub model and shared thoughts on how GPs and the peer workforce could play a bigger role in supporting mental health carers.

Find out more about the review at pc.gov.au/inquiries/current/mental-health-review

Related Posts:

Untitled 1
Advocacy

Future Planning 19 November – Focusing on Rights and Support

Future Planning Workshop: Focusing on Rights and Support – 19 November 2025 Our latest Future Planning workshop, held on 19 November at the Greek Club, brought together carers, families and supporters for an important conversation about rights, advocacy, and planning for the future. This session centred on understanding the systems that shape mental health care and social supports, and how to navigate them with confidence. Championing Rights in Mental Health Services We were delighted to welcome Margaret Murphy, an Independent Patient Rights Adviser (IPRA) working within the Metro South Hospital and Health Service. Margaret’s role is unique: although IPRAs work in public hospitals, they are independent from mental health services, allowing them to offer impartial advice to patients, nominated support persons, families and carers. Margaret explained how IPRAs support people to understand their rights under the Mental Health Act 2016, offer guidance during difficult or confusing periods of care, and help ensure that people feel informed and heard. She shared useful resources, including fact sheets, brochures and videos, which are easily accessible for anyone wanting to learn more. One story she shared captured the impact of this service: “Without the help of IPRA I would have left the hospital and

Read More »
Make the Holidays Easier Blog Post
Carer Support

Making the holidays easier: support and tips for carers

Making the holidays easier: support and tips for carers The holidays can bring extra stress for mental health carers, especially if the services your person relies on are closed. While everyone is dealing with the usual summer holiday celebrations (and stress), you may find yourself juggling more organising, bigger emotions and more crisis moments than usual. Add in financial, time and family pressures and it’s easy to feel stretched. So how do you look after yourself and the person you care for when a supposedly joyful time feels overwhelming? The good news? You don’t have to go through it alone. Arafmi’s 24/7 Carer Support Line is open every day, including public holidays (call 1300 554 660 or 1800 351 881 from Regional Queensland). We can also offer one-on-one support, depending on staff availability and we’re always happy to be part of your end-of-year wellness plan (more on that soon). Another way we support carers during this time is through our End-of-Year Preparation for Carers workshop. Ben, one of our Carer Support Team members, has been running this workshop for the past two years. He helps carers plan for tricky social situations, practise responses to hard questions and build in small

Read More »

Speaking Up for Mental Health Carers

Skip to content